By putting into words what life's like with NF, I want to help others understand life goes on and never let NF take over.
NF can be a very cruel condition and no one can say what life hold for someone with this condition, with me it caused Scoliosis, which required major surgery. I have at least one tumour on every nerve coming out of my spine. I have so many internal tumours that have given me lots of other disabilities. I wear a back brace, knee braces on both knees and leg/foot braces on both feet. But even though I have NF I am not about to sit back and let NF take over my life. I have been sat in hospital after hospital and seen doctor after doctor and not understood a word they have said, sit back and think how many times have you come out of your doctor surgery not understanding what he/her as said? Well, for me it’s been almost every time. So I decided to write a book using words that young people can understand. My book is not all about gloom it tells of some of the good things that have happened to me, I even got to meet Prince Harry and Prince William and have tea with them. I just want to help others.